Baby joy for tragic parents

Kim Robinson and Sean Forgione with their son Frankie Forgione.'they asked if we could mention,'http://www.caringbridge.org/visit/frankieforgione'http://www.justgiving.com/feetforfrankie
Kim Robinson and Sean Forgione with their son Frankie Forgione.'they asked if we could mention,'http://www.caringbridge.org/visit/frankieforgione'http://www.justgiving.com/feetforfrankie
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A Leyland couple who lost their 16-month-old son to a rare disease are celebrating news that they are expecting a baby boy – and tests have revealed he’s not carrying the same condition.

Kim and Sean Forgione’s son Frankie was born with a neurological disorder which meant he couldn’t be cuddled as his body was so sensitive that it would leave him writhing about in agony.

The condition, called Krabbe Luekodystrophy, affects just one in every 100,000 people and sufferers rarely live beyond the age of two.

Frankie lost his brave battle earlier this year. Now his mum and dad have revealed they are expecting another child, and tests have indicated it won’t carry the same disease that Frankie endured.

Mum Kim, 30, said: “I’m absolutely over the moon.

“Frankie was poorly for a very long time and it was so up and down. This has given us something really positive to look towards.”

Kim says while they could never replace little Frankie, having another child will mean they have someone to tell about their big brother.

She said: “We had a test about two weeks ago to make sure the baby was healthy and they came back clear.

“On Monday we had the last of the results. I’m chuffed and so is Sean. He had a feeling it was going to be another boy.”

Frankie was born in August 2009, and seemed a happy and healthy baby.

But he began to lose things like the ability to control his head movements, and eventually couldn’t laugh or smile.

At the age of just three months, doctors discovered Frankie had the rare disease and soon he required round-the-clock care and had to be fed through a tube in his nose.

For the full story, see this week’s Leyland Guardian.