A Leyland mum is hosting a family fun day to raise awareness of her little girl’s illness.
Melanie Moffatt has been travelling to and from London with five-year-old Matilda, who suffers from the rare genetic condition, late infantile battens disease.
The youngster is undergoing medical trials in the hope of finding a cure, but while she is home in Leyland, Melanie has also been focusing on organising the awareness event.
She said: “I want to raise awareness of battens disease, children’s diseases generally, and how they impact on families and their lives.
“I want to get the word out, and I also want to raise money for research and treatments, because I don’t want anybody to go through what Matilda and I are going through.
“I’ve been to the science labs in London so I’ve seen what they do for research, and they really rely on funding to help them find a cure for battens disease.”
‘Matilda’s Magical Day’ takes place this Sunday, August 10, at Avenham Park in Preston, from 11am until 5pm.
There will be a fun fair, Caribbean carnival entertainment, an ‘It’s a Knockout’ competition, live music, a beer and cider marquee and food, craft and other products stalls from across Lancashire.
“Matilda loves rides and music,” Melanie added. “So it’s perfect for her.
“She’s really been enjoying the summer holidays as she’s really outdoorsy, so she’s been enjoying us going on walks in the nice weather.”
Matilda has been in London since the start of the year with her mum Melanie for the ground-breaking medical trial, which involved having a hole drilled through her skull to create a reservoir in her brain, allowing the types of enzymes she is missing to be pumped into her brain.
Money from the event will go towards Batten Disease Family Association, Rock FM’s Cash for Kids, and the Magic of Matilda fund.